Empathy

What Are Real Examples Of Empathy In Your Life?

What Are Real Examples Of Empathy In Your Life?

MyCounterpane has partnered with Erika Lyons Richardson to bring you a question that is vital aspect when you live with multiple sclerosis: the empathy you receive from others.

While many MSers report that those around them don’t understand their MS, empathy from others does exist.

And we’d love to hear about the real examples of empathy in your life.

Whether it’s a neighbor who brings dinner over once a week because you’re too tired to cook, or a family member who volunteers to babysit your children when you have fatigue, empathy helps those who can’t always help themselves.

Use the …

American Health Care Act

What Would You Say To A Senator About The ACA?

American Health Care Act

The House voted 217 to 213 to pass the GOP health-care law, designed to replace Obamacare. The bill now goes to the Senate.

According to CNN,

“The Trump administration’s American Health Care Act — which squeaked through in the House on Thursday but must still be voted on by the Senate — will allow insurance companies to raise prices for those with pre-existing conditions and to not guarantee that treatments are covered.”

Multiple sclerosis is on the list of pre-existing conditions, along with:

AIDS/HIV, Alcohol or drug abuse with recent treatment, Alzheimer’s/dementia, Anorexia, Arthritis, Bulimia, Cancer, Cerebral palsy, Congestive heart

What’s on Your Mind While at MS Hope Day?

What is on your mind while at MS hope day? We are taking the time to ask our MCP users about their thoughts while they attended MS hope day. As an MCP user, you too can share your ideas and thoughts with other users through our platform.

So, what was on your mind while at MS hope day?

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Update: Your responses


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How Has Losing Your Job Work Affected You

How Has Losing Your Job/Work Affected You?

How Has Losing Your Job_Work Affected You?
MyCounterpane has reunited with Heather Leffel once again to ask an important question that is a challenging aspect of living with a chronic illness such as multiple sclerosis: employment.

Whether you had a career you loved or a part-time job that helped pay the bills, losing a job can have an immense effect on your wellbeing and lifestyle. This is true under regular circumstances, but especially true if you’re already living with a chronic illness that affects your life in so many other ways.

Therefore, we ask:

How has losing your job/work affected you?

Of course, losing work may not …

Jason DaSilva

When Jason DaSilva Walks: A MyCounterpane One On One

MyCounterpane founder Kate Milliken spoke with Emmy Award-winning filmmaker and MSer Jason DaSilva to discuss his film When I Walk, his life after his Emmy win, and the many projects he’s taken on since his film debuted and the whirlwind that followed.

The film follows DaSilva as he is diagnosed with primary progressive multiple sclerosis and goes from walking with a cane to a walker, and then, a wheelchair.

The film is deeply personal, but don’t think you have to have MS to truly appreciate DaSilva’s purpose and theme.

DaSilva explains,

“[The film] is supposed to touch people with

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Is Myelin Repair Possible In MS? This Physician Says Yes

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MyCounterpane founder Kate Milliken spoke with Dr. Ari Green, Medical Director at the University of California, San Francisco Neuro-Immunology + MS Center on December 2, 2016, to discuss all things MS and myelin.

If you’ve ever wondered why some tissues repair (a broken bone, for instance), and others don’t (myelin in MS patients), this discussion is for you. You can watch the conversation below.

Dr. Green discusses why we’ve come to believe MS myelin damage has a certain degree of permanence, why different species regenerate myelin within one month, and how working with scientists is opening up the doors to …

Who are you despite your MS

Who Are You Despite Your MS?

Multiple Sclerosis Blog, MyCounterpane

MyCounterpane reunites with Heather Love Leffel and brings in Erika Lyons Richardson, to ask you one of the most important questions about your life with MS that most likely, nobody has bothered to ask you.

The question is this: Who are you despite your MS?

Who are you when you’re not discussing stem cell research or attempting to explain your pain to your neurologist? Who are you when you’re having fun and not thinking about the disease that changed your life? Who are you when you remove the vitamins and pills from your daily regimen?

Who are you despite your …

Copy of Progressive MS

The Latest News On MS Research – December 20, 2016

copy-of-progressive-ms

We’ve been busy keeping up with the latest multiple sclerosis news regarding progressive MS with interviews with Dr. Fred Lublin and Dr. Saud Sadiq. We discussed the future of progressive MS with Dr. Lublin and using stem cells to treat progressive MS with Dr. Sadiq.

We encourage you to check out the discussions and if you’re craving more multiple sclerosis news, the articles below are chock full of new research and hopeful news.

How Oxidative Stress Affects Multiple Sclerosis

Oxidative stress, an imbalance between the production of free radicals and the ability of the body to counteract/detoxify their harmful effects …

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Using Stem Cells To Treat Progressive MS With Dr. Saud Sadiq

Stem Cells: you’ve heard about them but do you really know how they can help your life with MS? The fact is, the most popular stem cell treatments are for active relapsing-remitting MS. As you know, this is not great news for people with progressive MS. It can sound like yet another remedy for relapsing MS (Marcia! Marcia! Marcia!), but what about progressive?

Kate Milliken recently interviewed Dr. Fred Lublin on the future of progressive MS treatments, and on November 23, 2016, Kate Milliken spoke with Dr. Saud A. Sadiq, Director & Chief Research Scientist, about the use of stem …

Progressive MS 3

The Future Of Progressive MS With Dr. Fred Lublin


Can you believe it’s been 23-years since the first drug to treat relapsing MS was approved? That does not seem like too long ago, and may explain why treatments for progressive MS have been lagging. On November 29, 2016, Kate Milliken interviewed Dr. Fred Lublin, practicing physician at Corrine Goldsmith Dickinson Center for MS at Mt. Sinai in NYC, to discuss progressive MS and the future of treatment. Dr. Lublin has also served as the chair of the advisory committee on clinical trials of new MS drugs.

You can watch the One On One with Kate Milliken and Dr. Fred …